People in Your Life People come and go Part of our life And it is so Some through strife Harder for some To keep it together Always so dumb Bad or fair weather Prideful Arrogant Selfish Belligerent To name a few But more to ask for If you care to view Here are more Life circumstances Life traumas Life illnesses Life mysteries All kinds of reasons To be a jerk In all seasons To go berserk How you act Is how you are framed Try to use tact Or you get blamed You cannot hide For exceptionally long Sooner or later you slide You are not that strong To keep it at bay To keep it hidden To keep it suppressed To keep it smothered Useless effort Try to isolate To be better Is one trait Force others away So be by yourself No one to play Just pictures on the shelf A lonely crutch To protect your outbursts People are too much These are not unique firsts Social distancing Endless therapy Countless medicines Retreats and asylums Doctors galore Psychobabble What a bore Good for the rabble But the worse cases Must be dumbed down See it in their faces The emotionless frowns Pump them with drugs To make them acceptable No longer thugs Almost respectable They might be slow They might drool They might be lazy They might be dim But they are tamed They can be presented And beautifully framed Sat in the corner ornamented I do not want to be dampened I do not want to be unnoticed I do not want to be a simpleton I do not want to be devalued But to live in peace To live with immunity To live it must cease To live in unity Cease the anger Cease the explosion Cease the banter Cease the implosion Make a choice Or stay in a cave And listen to your own voice And be your own slave
Persecution
As I celebrate this Independence Day, I realize that the original colonies felt persecuted. Today, persecution exists in many manners and forms. No one has an exclusive right to claim persecution because it happens all over the world depending on who has the power. As Christians and United States citizens we have greater responsibility and accountability to address the injustices of our world. Happy Fourth of July! Remember how we got here and why!
Persecution Persecution is hostility Persecution is ill treatment Persecution is unfair treatment Persecution is abusive treatment Any act of ill will Can be persecution Sometimes a bitter pill No real solution Majority or minority Whatever color No authority or absolute authority Few dollars or bunch of dollars Atheism or Christian Does not matter This is not fiction Never ending chapter People will hate People will control People will attack People will kill This is our story Story of humanity Journey of fury And depravity Christians are oppressed In many ways This is not a test For it happens nowadays Christians are called names Christians are beaten Christians are rejected Christians are murdered I live in the USA Things are not like that here Maybe not today But listen and rehear Bad News 2 Timothy 3:12 (ESV) 12 Indeed, all who desire to live a godly life in Christ Jesus will be persecuted, 1 John 3:13 (ESV) 13 Do not be surprised, brothers,[a] that the world hates you. Good News 1 Peter 3:14 (ESV) 14 But even if you should suffer for righteousness' sake, you will be blessed. Have no fear of them, nor be troubled, Matthew 5:10 (ESV) 10 “Blessed are those who are persecuted for righteousness' sake, for theirs is the kingdom of heaven. But not in my United States Not in my USA city Not with my friends and mates Not in my church committee We are called by Christ To be one body Not cut and sliced And not inferior or shoddy One body as a whole Caring for one another Where I take a stroll Or miles from my sister and brother A Christian persecuted in Louisiana A Christian persecuted in St Louis A Christian persecuted in Facebook A Christian persecuted in the World All the same to our Lord And it should be the same to us We are on the same game board Some castled in blissful snugness Snugness from the action Snugness from the abuses Snugness from murderous fractions Snugness from the bruises The Bible is clear We are part of the One So shed a heartfelt tear For our Savior the Son Do not end now Do not forget Do not isolate Do not think your set Jesus wants us to love He wants us to get along Not be under the thumb of Those strong and wrong Many are harmed Not just us Christian Saints Remember the abused And their complaints Black lives of import And they have a point Not useless chatter An ugly wart Muslims matter too China restricts their birth pace This is more than a few Millions lost without a trace Women are left behind Why does their paycheck lag And the world is blind Do you have to nag Nagged to get your issues addressed Nagged to listen and learn Nagged to help and invest Nagged to make it your turn It is our turn to be accountable To use our capabilities To be countable To end these hostilities Christians have a call To address conflicts No matter how small And no quick fix God wants us to help God wants us to intervene God wants us to have compassion God wants us to act Act in many ways Donate your time Donate your money Donate your prayers God wants you to know God loves everyone Christians must acknowledge We are under the same sun Scriptures for One Body Romans 12:4 (ESV) 4 For as in one body we have many members,[a] and the members do not all have the same function, 1 Corinthians 10:17(ESV) 17 Because there is one bread, we who are many are one body, for we all partake of the one bread. 1 Corinthians 12:12 (ESV) One Body with Many Members 12 For just as the body is one and has many members, and all the members of the body, though many, are one body, so it is with Christ. 1 Corinthians 12:13 (ESV) 13 For in one Spirit we were all baptized into one body—Jews or Greeks, slaves[a] or free—and all were made to drink of one Spirit. 1 Corinthians 12:14 (ESV) 14 For the body does not consist of one member but of many. Ephesians 2:16 (ESV) 16 and might reconcile us both to God in one body through the cross, thereby killing the hostility.
When Do You Live
When Do You Live I do not know When you live You must tiptoe The issue to survive Survive abuse Survive intolerance Survive hatred Survive injustice Kill a baby Whenever you want Alive maybe All so nonchalant Womans rights are first No exceptions What can be worse Than ignorant misconceptions When does life begin Christians believe at conception Science has many spins And fixed perceptions Is life when DNA completes at 3 days Is life when the heart beats at 24 days Is life when brain waves are recorded at 43 days Is life when a baby can live outside the womb at 140 days Or is life when a woman decides I can abort my unique child And the world ultimately divides The world goes crazy wild One side says control my life Damn human life One side says save every life Precious human life Who is responsible for human health Is it each 3.8 billion women on the globe Or is it the elected commonwealth Or some unelected justice in a black robe Every human being is responsible for these losses You can not hide behind a lack of knowledge You can not hide behind your crosses You must reasonably acknowledge At 20 weeks it can live outside the womb Start here and make the laws the same Bring everyone who cares in the room And quit the shame and blame game
Smart Girl
Smart Girl has improved my life three times in the past two years. I am grateful for her help by reducing my anxiety, solving my leg pain issues, and identifying a possible explanation for my ongoing illness.
I recognize Smart Girl (Cynthia), and her daughter pulled me out of the pit of despair, allowing me to see there is hope, and there is a great deal of life to experience. They encouraged me to keep my journey going and do not give up. Cynthia and Elizabeth (EB) are the best friends anyone can ever possess. We experienced life together traveling many places, building sandcastles, attending an Arkansas football game, watching movies and cartoons, playing chess, building Legos, reading books, doing homework, eating breakfast, lunch or dinner, walking Sweetie Pie, taking and picking EB up to school and playing all types of sports including swimming, catching the ball, throwing the ball, swinging the bat, striking golf balls, shooting basketballs, rolling bowling balls, throwing darts, bicycling, walking, and laser tag. We had a great time, and I never thought I would experience life like that again. Thank you.
Smart Girl worked for Patterson Physical Therapy, and she identified and correcting the problems with my right leg. I went from constant step by step pain every minute of the day. My pain varied from hardly any pain to pain all the time. Patterson Physical Therapy identified my hip to heel ratio was out ten percent, and I was walking sideways. A few shoe inserts and I had instant pain relief. I want to thank them for solving the problem when many doctors, physical therapists, and chiropractors could not over five years. When you are not in constant pain, you can enjoy life, and you can experience it so much more.
In June 2020, Smart Girl presented Functional Neurological Disorder (FND) as a potential identification of my ongoing illness. No one has diagnosed me with this disorder, but it is a better option than PSP. When I read the information that she sent me, it described me perfectly. I did a blog about FNA.
I wrote this poem over a year ago, and it is in my book. I think very highly of Smart Girl, and I am publishing what she has done for me in my blog. I appreciate her dedication to my health. Thank you.
Smart Girl I recognized your smart And very astute It grabbed my heart And I started the pursuit You are very pretty So adorable Witty Certainly not ignorable Your appearance is striking Blue eyes mesmerizing Gazing at you and never tiring So so energizing I did not know what to expect Wondering if I could ask Could we connect It would be a mighty task You have a daughter Live with your parents We are moving through white water But you are not embarrassed You do not text Are very independent What comes next Certainly not dependence A single mother Living life Facing challenges one after another Needing a Swiss army knife Sometimes overwhelmed Sometimes quite well Certainly compelled Not to walk on eggshells What do I see What do I believe Do not disagree Or deceive Celebrate she is special Celebrate her resolve Give her a medal Watch her evolve You are unique A mystery A good deal of mystique But you have lived a real life history So many illnesses So many miseries So many sicknesses So many memories It makes me seek you more You are so strong It could be a love affair But more two friends traveling along I like you You are so fresh How do I pursue So we mesh Patience is good Do not smother Wait, in all likelihood We will find each other Friends Buddies Our relationship will pay dividends It will be very sunny A warming experience Soothing to our bones Reducing the weariness Eliminating the groans It makes me smile It makes me laugh Worthwhile I cannot wait for the next paragraph
Functional Neurological Disorder
Functional Neurological Disorder or Conversion Disorder
I have battled a health issue for six years with no diagnosis, just endless symptoms, and doctor visits. The symptoms are debilitating, but the worse part is they come and go like the wind. One minute I feel good and the next minute I feel awful. One-minute functioning and the next minute dysfunctioning. I minute normal and the next abnormal.
The doctor visits were intense. I saw over 45 doctors in the past six years. The doctors would talk to you and do all types of tests – brain tests, MRI’s, MRA”s inner ear tests, heart, lungs, knee and hip specialist, blood clot specialist, blood pressure, toxicology, EEG’s, EMG’s, anxiety exams, depression exams, etc. The doctors were from the best medical centers in the world – Mayo Clinic and Vanderbilt. They did not find anything wrong with me except anxiety and depression. All you need is a pill, and you will be better. The best line from the doctors was just wait until it manifests itself. Really, I am trying to live!
Of course, I am going to be anxious and depressed. Duh! I am falling backwards thousands of times and bless the Lord that I have hit the ground only ten times. I lose words, and I can not say what is on my mind. The sunlight shuts me down, making me retreat into myself. I close my eyes, and I cannot function. I fall left to right wobbling. These are daily occurrences. There are so many other symptoms that happen sporadically. I find it amusing the funny situations that I have experienced in the past six years.
For two years, the only disease that was close to my symptoms was Progressive Supranuclear Palsy (PSP). This is an undiagnosed disease that eats away at you until you die. No one says you have it until the end when you cannot walk, talk, or eat. They autopsy you to see your tau proteins bunched up on your brain. Yes, you had PSP. Wow! How nice! My adamant supporter, Smart Girl did not think I had it because I was not getting weaker physically, and I did not have a Parkinsonian look, which is present in PSP. When this is the only disease that fits all your symptoms, it is hard not to latch on to this disease. Gosh, I want to put a name to it. I want to know what is wrong with me. I want to be in control. Control of what? PSP is a killer. PSP is an ugly death. PSP is not merciful. PSP is painful. PSP is torture.
Last week (June 2020), my adamant supporter or I call her Smart Girl located Functional Neurological Disorder. What is that? I have never heard of that disorder. I do not remember any doctor, including many neurologists, mention it to me. They never even suggested it was a possibility.
What is Functional Neurological Disorder?
Functional neurological disorder (FND) is a medical condition in which there is a problem with the functioning of the nervous system and how the brain and body sends and/or receives signals, rather than a structural disease process such as multiple sclerosis or stroke.
What are the symptoms?
FND patients can experience a wide range and combination of symptoms that are physical, sensory and/or cognitive. The most common include:
Motor dysfunction
• Functional limb weakness/paralysis
• Functional movement disorders; including tremor, spasms (dystonia), jerky movements (myoclonus) and problems walking (gait disorder)
• Functional speech symptoms; including whispering speech (dysphonia), slurred or stuttering speech
Sensory dysfunction
• Functional sensory disturbance includes altered sensation; e.g. numbness, tingling or pain in the face, torso or limbs. This often occurs on one side of the body
• Functional visual symptoms; including loss of vision or double vision
Episodes of altered awareness
• Dissociative (non-epileptic) seizures, blackouts and faints: these symptoms can overlap and can look like epileptic seizures or faints (syncope)
Symptoms often fluctuate and may vary from day to day or be present all the time. Some patients with FND may experience substantial or even complete remission followed by sudden relapses of symptoms.
Other physical and psychological symptoms are commonly experienced by patients with FND but may not be present. These include: chronic pains, fatigue, sleep problems, memory symptoms, bowel and bladder symptoms, anxiety and depression.
Yes, I have many of those symptoms, and they come and go. Is this a real disorder or just a junk drawer for people who are messed up, but there is no diagnosis for me yet? I do not care. I rather think I have FND (live) versus PSP (die).
Is there a treatment?
Yes, I have new doctors to see and new treatments to try – CBT and ACT. I must be more self-aware of what triggers my symptoms. I must learn techniques to reset myself once symptoms start. My favorite is when I cannot pronounce words or get them out of my mouth then sing a song. I sing “Everyday with Jesus,” and then I can pronounce the word or get it out of my mouth. How wonderful is that! In one week, we have found one reset. How exciting. Now, I am looking for triggers to stop symptoms before they happen and for reset techniques to get me back to normal as soon as possible.
Praise
I praise God for the blessing in my life. In the past two weeks, God put Smart Girl in my life. She found this disorder, she made me aware of the disorder, and she helped me with the first symptom reset. Two, the Lord gave me hope and endurance. The Lord gave me the will to enjoy each day and to live. Thank you, God!